It’s been a busy time – C and I are closing on our new house
November 30th and moving the following weekend. My term at the U is
wrapping up and I’m finished with my licensure work. I feel more grounded than
I have in a while, and have found the energy to reinvest in conversations about
policing and refugees and politics. Dialysis has been smooth for the past two
weeks, and seems to be continuing to be smooth, so access failure isn’t such a
pressing concern. It is only a matter of weeks before the access needs more
treatment, and it is only a matter of time (probably in the 12 month range)
before it fails entirely.
Corinne and I listened to The Martian over a few car trips
last year. The premise, that Mark Watney is stuck on Mars for months which turn
to years, entirely alone, fending for his life, is incredibly engaging. A
rescue mission would be dangerous and he worries about his colleagues and
friends risking their lives to save his. This resonated with me. It is
overwhelming to think about the sacrifices people have made for me by donating
a part of themselves. It’s overwhelming to consider that people would consider
being tested to donate. And it is overwhelming to think that to find someone to
donate, I need to advertise for that kind of generosity.
I’m not sure how to write about this. I worry that these
posts will shift from informative story-telling to a kind of soliciting
story-telling. I wonder who I am to ask for such a thing. I worry that I am
antagonizing people who have already been tested, or who want to donate and
cannot. Yet I also imagine that many of you have thought about being tested and
just haven’t for whatever reason, which is exactly where I would be, to be
honest.
Asking for things in general is tough for me, and this is a
big ask. But I’m weeks away from being eligible for a transplant and there is
no donor in sight. I don’t know – how does anyone navigate this kind of thing?
I want to say – please get tested. And I want to say – I’m sure someone will
turn up and suddenly the wait will be over. I want to say – I feel great,
dialysis is no trouble. And I want to say – I feel like my life is on hold
until this is sorted out. That’s all true. Well I think I’ll leave it here. I
wanted to embed this renewed called for donors in a more substantial post, but
that isn’t really working. Please consider getting tested: (Susanna @ 612-863-8886).
Thanks for reading.
Dear Kevin, I am Lara's (your sister in law) aunt, and PJ shared your post. I am impressed by your courage, frankness and honesty, being at this crossroad. I don't know anything about testing or donating, but I promise to look into it, and will share PJ's post. I hope a donor will be found soon. Sending you kindness and light.
ReplyDeleteMany blessings to you, on your journey in life. thank you for your courage, your honesty, your vulnetability, and stepping beyond your comfort to stand up for your life and living. I say fuck it, be bold, be brazen, ask large..seems like you have everything to gain, and absolutely nothing to lose but that which needs to go
ReplyDeleteI say inspire us all Kevin!!