Hey all, it’s been a while! I’ll start by saying thanks for
the thoughts and well wishes. I’ve had, by most counts, a perfectly lovely
spring. I took just one course at the U, which I enjoyed thoroughly, and for
the first time I didn’t feel like an imposter! It only took 4 years! That
wrapped up in early May. My teaching term finished last week unremarkably. The
politics at school were tumultuous this last year and the school will look very
different next year, but I’ve been keeping my head low and this isn’t the place
to discuss that. Dialysis has been similarly unremarkable, which is a nice
change from the fall. I’ve been going like clockwork Monday Wednesday Friday
since January. I’ve long given up on doing much work. Since the incident in
February, I’ve seen dialysis as something to pass through. I’ve watched enough
Netflix to do me for some time, though not to the point where I’ve overcome my
childhood inability to function when a show is on. While I have committed
considerable anxiety to my transplant prospects, I’ve been pretty happy these
past few months. I’ve felt good. But it is still with a great deal of relief
and excitement that I report that a transplant date is on the (very near)
horizon!
First, a quick update on the past few weeks. As of early
May, I knew of a few potential donors by way of “mid-run cross matches.” Before
February, an initial cross-match was done virtually, by comparing tissue typing
on paper. The final cross match, when surgery was scheduled and all the tests
complete, was the first time the cross match was done by mixing the bloods.
After the positive cross match against Jackie’s kidney, they began doing
mid-run cross matches, meaning that four or five times, I got a call from my
coordinator asking if I could do a blood draw for this or that potential donor.
I know that there have been many more donors who did not make it to this stage
– I am forever grateful to you! Thank you! And I know of at least one person
who, though not a match for me, is going to donate to a stranger! That’s huge!
There are so many awesome people, like myself, waiting for a kidney. Please
consider it.
As of mid-May, my brother-in-love Paul Wichser was a match!
He had kept me posted on his progress so it wasn’t a complete surprise, but
still! He needed to get insurance before we could move forward, and that took
some time and bureaucratic wrangling. Finally, he was able to get short term insurance knowing that he
would have full coverage in the fall when he starts an a high school
engineering teacher! Exciting on so many levels! As of last week, we were
talking dates in late June and July.
Then, on Thursday, Paul was told there was another donor who
was a better match. At almost the same time, Thursday afternoon, I got a
request from my coordinator for a potential donor to contact me. Absolutely.
Friday I got a call from a college friend of PJ’s, telling me that he was a
match and asked if we could talk dates. We were also talking late June and
July, though he asked if June 13th would be too soon. Tomorrow isn’t
too soon for me, and the 13th was a wild pipe dream, but I said of
course, the 13th would be great. On Monday, he called again to say
that, pending the final cross-match, we are scheduled for surgery on June 13th.
!!!!!
Now, as you might guess, I’m approaching this with an
abundance of caution. I’m not going to fully believe it until they give me that
sweet barbiturate push on my way into the OR. Well, actually I pretty much
believe it now, and I’ll believe it a lot more on Thursday when we hear about
the final cross-match. I’ll post here about those results.
I’m writing this from Pepin. It’s been an absolutely lovely visit for
Oscar and I. I’m posting a few photos here, reminiscent of the old days when
this was a travel blog. Plus a bonus picture of Miri offering me some pizza at Pizza Luce. Thanks for reading!
This is the best news ever! I'm beyond words thrilled to read this. This is tremendous.
ReplyDeletexoxoxoxo
Stefanie Segar